Disease sends toddler back through time

We all remember Nikki Norman. Her little girl has been diagnosed with metachromatic leukodystrophy, a rare and terminal disease. Eliza has the late infantile form, the most common and most severe. Symptoms include muscle wasting and weakness, muscle rigidity, developmental delays, progressive vision loss, convulsions, trouble swallowing, paralysis and dementia. Most children with MLD do not live to age 5. The other forms start later and progress more slowly.

I advise all to read this article. It breaks my heart to hear about the pain Nikki's family is suffering but am so touched to see the strength and love she has for little Eliza. We are thinking about you Nikki and hopefully we can meet Eliza at the next "monthly birthday party."

Here's the link to the article that was on the front page of the Deseret News in Salt Lake City: http://deseretnews.com/article/1,5143,700234571,00.html